Updated: 12/2019
I used to have a much more extensive Guide to Facebook groups, but there are now literally a gazillion of them. There is one person in the Facebook FQ community literally creates them on every obscure FQ subject as fast as they could. Honestly, I think it is a popularity contest for some individuals to see how many groups they can create 🙂 Anyway, to try to list them all and keep them up-to-date would be a futile endeavor and frankly, many of them are worthless and clutter up the landscape. Believe me, if you are floxed and looking for help, you don’t need the drama or riding along on someone else’s narcissistic endeavor. Below I have listed a few groups that I endorse. If you have a question about the merit of a particular group you can shoot me an email or message.
Open groups are more directed to public awareness and advocacy while closed groups deal mainly with various specific, personal and private issues associated the FQ problems. Group’s status of open or closed will be noted in their description.
CLOSED GROUPS
groups that require admittance by an admin
Fluoroquinolone Toxicity 24/7 Live Chat Group
(https://www.facebook.com/groups/191063714251094/)
With over 3,300 members, this group is a community to exchange information,support one another and promote nonpartisan activism to advocate for FQAD victims. This is a closed group where members must request to join, and only members of this group will see your posts.
FQ Male’s Only Group
(https://www.facebook.com/groups/595139243905692/)
There is a group just for men, but frankly if you have any ‘male’ questions about floxing, just shoot me a line.
Fluoroquinolone Research & Discussion Group
(https://www.facebook.com/groups/115966251889165/)
This group is an information based group, where we post articles, research, and other things of the sort about FQ toxicity. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public. Posts are limited to research articles and discussion about research articles. Research is limited to peer reviewed only. This is not a group designed for general discussion and discussion is limited to discussing peer reviewed research articles.
Long Time Floxed
(https://www.facebook.com/#!/groups/204433513058121/)
This group is a group geared towards floxies who have been floxed for at least two years or longer. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public. Less than 400 members and moderately active.
Floxie Finder
(https://www.facebook.com/groups/222676757897021)
This group focuses on helping victims of FQ Toxicity find each other and meet up and form small regional groups. At some point, we will be able to have the strongest healthiest floxies in an area help the ones who are in bad shape. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.
Christian Floxies without Politics
(https://www.facebook.com/groups/3587480791269964/)
This group is for Christians who have had adverse reactions to any of the FQ antibiotics. It provides encouraging and inspirational messages for members to get through their floxing. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public. There was another group who was created by the man I mentioned above but he has proven to be too divisive and political for many of those seeking solace.
OPEN GROUPS/PAGES
Fluoroquinolone Antibiotic Toxicity (Cipro, Levaquin, Avelox, Floxin)
(https://www.facebook.com/FluoroquinoloneToxicity)
To educate the public on this antibiotic toxicity and to inspire righteous activism. The drug companies downplay and minimize this toxicity. Thousands of us should not have had our lives destroyed by this class of antibiotics. Thousands more will have their lives altered in the future.
Fluoroquinolone Wall of Pain
(https://www.facebook.com/pages/The-Fluoroquinolone-Wall-of-Pain/209182505773463)
This Facebook page was created to help raise serious advocacy and activism. They hope to help warn and prevent others from suffering a severe toxic injury by putting a public face on the travesty of FQ toxicity.
If you are a doctor, please consider joining the Hacking Fluoroquinolones Group listed below.
MY QUIN STORY SPONSORED GROUPS/PAGES
Life After Levaquin
Open Facebook Page designed to be the companion Facebook Page for the My Quin Story’s Life after Levaquin Website. Designed to spread advocacy and awareness, this page is open to be ‘liked’ by anyone. Help us recognize this world-wide travesty.
(https://www.facebook.com/MyQuinStory)
My Quin Story’s Hacking Fluoroquinolones
A closed Facebook Group dedicated to unraveling chronic fluoroquinolone toxicity syndrome. We discuss what is working for those chronically affected. We collect information for FQ researchers and work on research projects. We have several doctors in the group. Our goal is to engage in intellectual discussions and to think ‘outside the box’ and see if there is any information that can be used to propose fixes, treatments, and/or narrow down options in a shorter time-frame. This group is only open to those have been chronically impacted for two years or longer and consider yourself functionally disabled (to Join you must send a message to an admin.)
